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Home » Blog » OUR LIFE » MY STORIES » RA COMMERCIALS…REALLY?!?!

April 22, 2015 By Rena McDaniel 85 Comments

RA COMMERCIALS…REALLY?!?!

https://thediaryofanalzheimerscaregiver.com/2015/04/ra-commercials-really/

RA COMMERCIALS…REALLY?!?!

I originally wrote this in May of last year, but it is such an important issue that I decided to update it and run it again!

I am sure you have seen them..they are on every 20 minutes it seems, those commercials for a new RA miracle drug. They usually star a woman running around doing everything from building playgrounds to cooking a ten-course meal for her family.  These commercials drive me crazy and if you look closely at the picture above I am not alone!
RA is hard enough to deal with, people just don’t understand it.  They hear “arthritis” and you get, “Oh, I have that in my knee” or “My grandma had that.” etc.  Arthritis is one thing, Rheumatoid Arthritis is a whole other ballgame.  I don’t understand how the word “arthritis” even got in the name.  Yes, ONE of the symptoms is arthritis.  But that is where the similarities stop.

RA is an “autoimmune” disease.  It is caused when something has gone wrong with the immune system and it begins to attack all the good healthy joints, lungs, heart and so on. There are all kinds of symptoms besides the burning and swelling of joints although this a very painful one.  There are also the fevers, the fatigue, the infections, brain fog, depression, and so on and on and on.

I have tried almost all of the medicines out there and some work for a little while, others not at all and then there are the ones where the side effects are worse than the disease itself. I am not an expert on RA believe me, just a patient who lives with it every single day of my life. If I can cook dinner for my family, it is a good day. If I can clean my own home it is a wonderful day. If I can go to the grocery and walk through the aisle on my own (with the aid of a shopping cart) and make it back out without catching some long leftover virus from someone walking past me, then it is like the 4th of July, fireworks and all!

The worst part for most patients that I have talked to is the lack of understanding and support. People don’t understand it because of commercials like this that don’t tell the real story. The patient doesn’t “LOOK” sick, so it can’t be that bad right? Wrong, we just learn to keep most of it to ourselves. So if you know someone with RA be kind.

If I have to go somewhere, do something important then I have to rest up the day before and again the day after. An afternoon shopping trip to most people sounds like a lot of fun. To someone like me it can be a nightmare. RA leads to depression if you aren’t careful. In my case, I don’t think I am depressed although I do have DOWN days. I feel like I have to stay away from people to stay healthy. A flu to you is miserable. The flu to me is weeks in the hospital and thousands of dollars. It has made me a social hermit. I don’t go out and do the things that may be fun because I just can’t afford to pay for it later.

So if someone you know suffers from an autoimmune disease be patient. If they cancel plans or back out of doing the things they used to do…they have their reasons and need your understanding and support!
Appreciate the good, laugh at the crazy, and deal with the rest! I love you momma

 

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Filed Under: MY STORIES, RA, RESOURCES Tagged With: RA, RA humor

About Rena McDaniel

I'm a recovering Alzheimer's Caregiver, a former loving daughter, a current wife, mom, and grandma who remembers all too clearly what it is like on the front lines of Alz Caregiving. I provide real advice, pro tips, or excellent tools from my own experiences and other experts I find along the way. A community of caregivers supporting each other!

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Comments

  1. Carol Cassara says

    May 7, 2014 at 1:12 pm

    You raise such a good point. It’s true about depression, too, and so many other conditions.

    Reply
    • Rena McDaniel says

      May 7, 2014 at 2:57 pm

      Thank you Carol.

      Reply
  2. Michelle F. says

    May 7, 2014 at 1:25 pm

    I don’t know anyone with it but I can see why those commercials can upset you.

    Reply
    • Rena McDaniel says

      May 7, 2014 at 2:58 pm

      They don’t really upset me they just don’t tell the “true” story.

      Reply
  3. cococute says

    May 7, 2014 at 1:30 pm

    I do know about arthritis but RA is new to me and as you feel upset about the commercial or ads about it I think some media people must look at mass sensitivity first before publishing such commercial.

    Reply
    • Rena McDaniel says

      May 8, 2014 at 8:29 pm

      They are trying to sell a product and don’t care how they do it!

      Reply
  4. Roch says

    May 7, 2014 at 1:39 pm

    I’m not familiar with RA but maybe ashitaba can work on treating that.

    Reply
    • Rena McDaniel says

      May 7, 2014 at 2:58 pm

      I’ve never heard of that.

      Reply
  5. Michelle @ A Dish of Daily Life says

    May 7, 2014 at 2:32 pm

    Personally, I think there are far too many commercials for pharmaceuticals. They promise the world. but the reality is health care decisions should be between a patient and a doctor, not a commercial touting their “latest and greatest.” Of course television never tells the whole story.

    Reply
    • Rena McDaniel says

      May 7, 2014 at 2:59 pm

      So true Michelle, they give people the wrong ideas.

      Reply
  6. kungphoo says

    May 7, 2014 at 2:51 pm

    You are right, you give is something to think about.. Those commercials are all fluff in my opinion, they tell you what you want to hear not what it is really all about.

    Reply
    • Rena McDaniel says

      May 7, 2014 at 2:59 pm

      Very true, they aren’t the reality they are just trying to sell their products.

      Reply
  7. Franc Ramon says

    May 7, 2014 at 4:38 pm

    I guess overkilling a point in the commercial makes it not effective.

    Reply
    • Rena McDaniel says

      May 7, 2014 at 6:01 pm

      Definitely!

      Reply
  8. Paula Parker says

    May 7, 2014 at 4:53 pm

    Love this quote: Remember to Appreciate the good, laugh at the crazy and deal with the rest! I wish you the best!

    Reply
    • Rena McDaniel says

      May 7, 2014 at 6:02 pm

      Thank you Paula!

      Reply
  9. Heather @ Divas Run for Bling says

    May 7, 2014 at 6:29 pm

    i think that there are too many of those types of commercials out there as well. you raise a good point about how vague some of the symptoms are.

    Reply
    • Rena McDaniel says

      May 8, 2014 at 2:08 am

      Yes there are definitely to many!

      Reply
  10. lisa jones says

    May 7, 2014 at 7:49 pm

    they Are All Scams & A Rip Off I Tell You Hate Them They Drive Me Crazy Too!1 LOL

    Reply
    • Rena McDaniel says

      May 8, 2014 at 2:09 am

      Very aggrivating

      Reply
  11. Leira Pagaspas says

    May 8, 2014 at 12:27 am

    I wish they can just tell it as it is and not exagerate.

    Reply
    • Rena McDaniel says

      May 8, 2014 at 2:09 am

      That would be nice!

      Reply
  12. Rebecca Swenor says

    May 8, 2014 at 1:37 am

    I was diagnosed with fibromylagia so my symptoms are a lot like yours. Prayers go out. Never give up. Commercials are only to sell the products but keep in mind some people are worse than others.

    Reply
    • Rena McDaniel says

      May 8, 2014 at 2:11 am

      Yes I was diagnosed with that as well but it usually takes a back seat to the other. Good Luck!

      Reply
  13. jane says

    May 8, 2014 at 2:14 am

    sure is i’ve learn something today from reading this! such a nice post and very informative.

    Reply
    • Rena McDaniel says

      May 8, 2014 at 2:33 am

      Thank you Jane.

      Reply
  14. Sharon says

    May 8, 2014 at 2:47 am

    Commercials never tell the whole story and yes, no two days are exactly the same

    Reply
    • Rena McDaniel says

      May 8, 2014 at 11:53 am

      Your exactly right Sharon!

      Reply
  15. Amanda says

    May 8, 2014 at 3:10 am

    I agree, they never do paint a really clear picture in the commercials.

    Reply
    • Rena McDaniel says

      May 8, 2014 at 11:54 am

      No they don’t!

      Reply
  16. lloyd says

    May 8, 2014 at 12:25 pm

    I haven’t heard it before but it is really a dangerous for us.

    Reply
    • Rena McDaniel says

      May 8, 2014 at 5:33 pm

      Thanks Lloyd

      Reply
  17. Alyssa C says

    May 8, 2014 at 1:20 pm

    I can definitely see why this commercial would upset you!

    Reply
    • Rena McDaniel says

      May 8, 2014 at 5:33 pm

      Thank you Alyssa C.

      Reply
  18. michele d says

    May 8, 2014 at 1:24 pm

    I can see why your so upset. I would be too. Take care

    Reply
    • Rena McDaniel says

      May 8, 2014 at 5:34 pm

      Thank you Michele D.

      Reply
  19. Ave says

    May 8, 2014 at 3:21 pm

    I think it’s normal that people who do not have RA don’t know how it really is and I totally understand what these kinds of commercials do to people with RA. Thanks for raising the topic!

    Reply
    • Rena McDaniel says

      May 8, 2014 at 8:24 pm

      Thank you for listening!

      Reply
  20. Alex | Thrifty Below says

    May 8, 2014 at 4:17 pm

    My grandma is 75, super active, and loves going on these adventure vacations with safaris and white water rafting… but she has RA and it’s horrible to see it deteriorate. Her Humera injections really scare me too because it just completely destroys your immune system. She had to leave a trip early because she got pneumonia, and we were all so worried. 🙁

    Reply
    • Rena McDaniel says

      May 8, 2014 at 8:23 pm

      Yes getting sick is the normal, it happens ALOT!

      Reply
  21. Paula - Buenos Aires says

    May 8, 2014 at 6:09 pm

    It is so frustrating when you try out medicines that as you say, have side effects which are almost worse than the disease itself. WIshing you many “awesome” days.

    Reply
    • Rena McDaniel says

      May 8, 2014 at 8:22 pm

      You are so right! I’ve ended up in the ER just because of side effects before. Thank you!

      Reply
  22. Natalie says

    May 8, 2014 at 6:51 pm

    I hate all ads like they.. filled with promises and hope.. and it’s usually a load of crap.. I don’t know a lot about RA, so I wont talked out my bum about it.. but this is true about most diseases like this…

    Reply
    • Rena McDaniel says

      May 8, 2014 at 8:30 pm

      Thank you Natalie!

      Reply
  23. Joanna Sormunen says

    May 8, 2014 at 7:42 pm

    RA is a tough disease. I have a lot of respect for you for living every day with it. God bless!

    Reply
    • Rena McDaniel says

      May 8, 2014 at 8:20 pm

      Thank you so much Joanna!

      Reply
  24. Joyful Gifts by Julie says

    May 8, 2014 at 8:54 pm

    Hi Rena, I knew RA was very disabling, but I didn’t think about the part of other people thinking you’re ok when your not. It’s kind of like people with mental disabilities. To the average person they see nothing wrong with them, but really on the inside they maybe having an anxiety attack or bout of depression. They’re doing their best to move along in their daily life without anyone seeing their troubles. I also hate the phony commercials that show people living the good live and then the disclaimer comment at the end says, oh yeah and the meds might cause you to feel suicidal or cause death. It’s so ridiculous. Blessings for you Rena.

    Reply
    • Rena McDaniel says

      May 9, 2014 at 12:20 am

      That is so true! I guess that saying, “Don’t judge someone until you’ve walked a mile in their shoes” ring so true!

      Reply
  25. Jennifer Brown says

    May 9, 2014 at 3:14 am

    Wow! I see your point.

    Reply
  26. Cyndi @ MrsWrightWrites says

    May 9, 2014 at 10:51 am

    I had no idea arthritis was an autoimmune disorder. You’re right, people are under informed. I’ve seen these commercials as well, and they do play down the real burdens of people struggling with arthritis. Thank you for brining this to my attention.

    Reply
  27. E Spinelli says

    May 9, 2014 at 9:11 pm

    Really interesting, thanks for the article!

    Reply
    • Rena McDaniel says

      May 10, 2014 at 9:21 pm

      Thank you!

      Reply
  28. Kath Rivera says

    May 12, 2014 at 11:19 am

    I’m not aware of RA, but I’m sure whatever it is there’s a certain medication for that. Just proper knowledge about the medicine will make a big difference.

    Reply
    • Rena McDaniel says

      May 12, 2014 at 12:06 pm

      This is exactly my point.

      Reply
  29. bakinginatornado says

    April 22, 2015 at 9:17 am

    I’m surprised daily by how many people I know who have autoimmune diseases. And I’m glad that people are talking about it more.
    Although I don’t understand, I can’t, I can certainly sympathize.

    Reply
    • Rena McDaniel says

      April 22, 2015 at 9:24 am

      It seems to be increasing daily for sure. I wonder why that is.

      Reply
  30. Carol Cassara (@ccassara) says

    April 22, 2015 at 10:55 am

    Understanding is EVERYTHING. And you have helped generate that. Blessings to you, sugar.

    Reply
    • Rena McDaniel says

      April 22, 2015 at 12:57 pm

      Thanks Carol!

      Reply
  31. Susan - ofeverymoment says

    April 22, 2015 at 10:57 am

    Painting this true picture with your words will help people to understand and empathize in ways the RA commercials certainly do not. Valuable information, Rena!

    Reply
    • Rena McDaniel says

      April 22, 2015 at 12:58 pm

      Thanks Susan! Those commercials make it sound so easy…but it often isn’t.

      Reply
  32. Carol Graham says

    April 22, 2015 at 12:08 pm

    This brought back so many memories of when I was diagnosed with RA around the same time I was diagnosed with cancer. I also remember all the awful drugs, including steroids, and the side effects. I remember trying not to show how much I hurt by trying to hide it. I remember when the doc talked about autoimmune disease. It was scary. I certainly can empathize with you. But you know the road I chose and I have been RA free and cancer free for decades. There is always hope

    Reply
    • Rena McDaniel says

      April 22, 2015 at 1:50 pm

      Yes, there is Carol! You are very blessed.

      Reply
  33. Generation Above Me (@TheGenAboveMe) says

    April 22, 2015 at 2:39 pm

    Thanks for raising awareness. I have a first cousin with RA, diagnosed in his mid 20s. But we live in different states, so I have no real idea what he’s trying to manage. All my best to you.

    Reply
    • Rena McDaniel says

      April 22, 2015 at 6:37 pm

      Thank you! I’m a lot better off than some.

      Reply
  34. tani says

    April 22, 2015 at 2:51 pm

    I hate all big pharma commercials for too many reasons to state here but I strongly believe that modern meds (along with diet and exercise that sadly don’t show) have given me mostly “perfect” blood test numbers. However I realize I’ve been exceptionally lucky in the side affect department and know that can change at any moment.

    Thanks for an education in RA I had no idea about much of it.

    ~pia

    Reply
    • Rena McDaniel says

      April 22, 2015 at 6:39 pm

      Hi Pia! I’ve missed you! You’re so right those side affects can be awful! Hope you’re doing okay!

      Reply
  35. Ice Scream Mama says

    April 22, 2015 at 2:58 pm

    My cousin has RA and she manages best she can. Most of the time you would never know. Life ain’t always a bowl of cherries. Wishing you well.

    Reply
    • Rena McDaniel says

      April 22, 2015 at 6:42 pm

      That’s for sure, everybody has something. I believe part of it is a person’s attitude. I have found a positive one necessary for a happy life.

      Reply
  36. Anita Irlen says

    April 22, 2015 at 3:11 pm

    People want to really see illness, then they believe. If you can’t see it it’s not there? It’s tough for people that have illnesses that can’t be readily seen. I know. In Buddhism they teach that you should treat every person you meet, like they were your mother, with kindness and compassion. Among other things, that means to me that you never ever know what’s going on with a person inside, so don’t judge and assume. Now I’m going to give you a piece of advice, that you probably don’t want but it’s given with respect. Have you tried yoga? I think yoga is especially good for autoimmune diseases. Thanks.

    Anita

    Reply
    • Rena McDaniel says

      April 22, 2015 at 6:47 pm

      That’s so true Anita. Since I was diagnosed I moved to a warmer climate, changed my diet drastically and started walking, canoeing and swimming. I had to limit my walking and started doing yoga and I love it. I do it in the mornings and keep regular stretching throughout the day and it has made a huge difference in my pain levels. My problem is being around people and getting sick but even that has improved over the last year.

      Reply
  37. Haralee says

    April 22, 2015 at 6:32 pm

    I used to call on a Rheumatologists when I was a pharmaceutical rep and learned about RA and it really can be a debilitating disease. It is a disease that is under the radar for most people and those commercials don’t help! I am in awe of what you do!

    Reply
    • Rena McDaniel says

      April 22, 2015 at 6:52 pm

      I’ve been one of the lucky ones Haralee. Since making big changes in my lifestyle my pain level has significantly dropped and as long as I don’t get an infection things are pretty good right now for me. I take my last Rituxan infusion tomorrow so I’m optimistic!

      Reply
  38. claudiaschmidt2013 says

    April 22, 2015 at 8:34 pm

    Hi Rena, My sister also has RA and she has many of the same issues as you share above. It’s a terrifically debilitating condition and I’m so sorry you have to go through it each and every day. My heart goes out to you. I can see why the commercial would make you so mad. xoxo

    Reply
    • Rena McDaniel says

      April 24, 2015 at 5:24 am

      I’m sure you have seen commercials similar in nature Claudia. Everything the pharmaceutical companies make are the next “miracle cure” for what ails you. I’m sorry about your sister!

      Reply
  39. dltolley says

    April 22, 2015 at 9:38 pm

    When my Mom was in a home, there was a woman just down the hall who suffered terribly with RA. A young woman. Her fingers were twisted like corkscrews. Most of them bent the wrong way. She couldn’t use them for anything. She was wheelchair bound, and her body denied her even the most basic of abilities. But still she was the most cheerful, upbeat person in spite of the unbelievable pain she must have been suffering. I think of her often. Every time RA is mentioned, I think of the agony she must have suffered every moment of every day. Believe me, Rena, my sympathies and prayers are with you! <3

    Reply
    • Rena McDaniel says

      April 24, 2015 at 5:26 am

      Thanks Diane! Wow what a scary picture. I’m very lucky in that aspect. While I do have joint pain sometimes pretty bad especially with my feet and ankles mine seems to be going after my heart and lungs more often. Of course that’s due to 30 years of smoking I’m sure!

      Reply
  40. Lana says

    April 23, 2015 at 1:38 am

    I’m so glad you reran this Rena. I hate all of those commercials, because all they care about is selling drugs – not the people who are suffering! I’ve learned so much about RA from you, and with your positive attitude, you’re my hero!

    Reply
    • Rena McDaniel says

      April 24, 2015 at 5:28 am

      You are so sweet Lana! I’ve been very lucky to have found one of the best RA docs out there. He retires in July so I’m just hoping his predecessor learned alot from him.

      Reply
  41. Carolann says

    April 23, 2015 at 9:25 am

    I do exactly! I had guillain barre syndrome just a few years ago and still suffer from it. Those commercials make me nuts! Great info and thank you!

    Reply
    • Rena McDaniel says

      April 24, 2015 at 5:29 am

      I had not heard of this before. I hope you are doing good now. Even the name sounds scary!

      Reply
  42. Adrian says

    April 26, 2015 at 3:10 am

    I don’t understand why we allow all these phamaceutical commercials. Most of the symptoms are as bad or worse than the disease. We managed to ban cigarette commercials, I don’t see why we can’t ban these as well. It’s all about profit and I can’t think that’s a good thing.

    Reply
    • Rena McDaniel says

      April 26, 2015 at 7:43 am

      I agree Adrian. They flat out lie to people and that is never a good thing. I see it for all kinds of medications not just the RA drugs. Thanks so much for stopping by and commenting!

      Reply
  43. Rosemond says

    April 27, 2015 at 12:23 pm

    Thank you for your brave sharing and raising awareness not only for RA but also of other “hidden” illnesses.

    Reply
    • Rena McDaniel says

      April 27, 2015 at 3:15 pm

      Thanks so much Rosemont I’m so happy that you enjoyed this!

      Reply

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